January 7, 2023
December 15, 2022
December 2, 2002 Chan Zuckerberg Initiative Grant
February 28, 2021
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
February 12, 2021
2020 MDBR $82,000 CADASIL Grant Awarded!
The Penn Medicine Orphan Disease Center 2020 Million Dollar Bike Ride CADASIL research grant has been awarded to Massayo Koide of the University of Vermont Larner College of Medicine! The $82,795 grant will fund her research study entitled
January 12, 2021
The NIH has awarded the Schepens Eye Research Institute of Mass Eye and Ear and Harvard Medical School $3.8 million from the National Institute of Health to develop a new therapy for CADASIL. That is a the way to start 2021! Thank you for taking the lead Dr. Joseph F. Arboleda-Velasquez!
January 24, 2020
The 2019 MDBR $81,000 CADASIL research grant has been awarded to Dr. Fabrice Dabertrand at the University of Colorado! #cureCADASIL #thankyouMDBRsupporters
November 13, 2017
The Town Board of Clifton Park, NY passed a resolution declaring November 16th as CADASIL Awareness Day in their town